As I could have acquired Lyme virtually anywhere in the world on my travels then this lab seem to cover the most strains. Also my GP is likely to be unhelpful and may not sign lgenex’s paperwork so at least I can go direct with Infectolab.
Would love to do all the coinfections as my immunity is a big issue but testing for these will really add up. Should I wait and see how the Lyme panel goes first?
X Jo
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May McGrath likes this.
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Linda Brannigan Smit Hi Joanne Lee. How did you find out what strains Infectolab test for?
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May McGrath I didn’t know they tested for more strains. Do they include those 2 bands from the vaccines which most test kits don’t include? I know Igenex include those 2 but I don’t know about Infectolab.
I hope someone can give an answer soon because I’m going to BS on Monday and I need to be sure which lab I want to ask for.
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Sophie Grace Kellaway I’m an infectolab fan. Bear in mind if you’re waiting to do coinfection tests you’ll be paying an extra 60 euros postage. But if you’re not certain you have lyme it’s wise to wait.
May – yes they include all the borrelia antigens (bands), as well as all 3 species. If the western blot with infecto is positive for p39 they actually tell you which species you have However, Breakspear won’t treat based on them anymore judging by recent people’s visits.
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Joanne Lee Thanks folks. Linda Brannigan Skit, I just emailed iGenex and they said they only test for strains originating in America but folk who have never been to America are still getting positives.Sophie Grace Kellaway hmmm that’s annoying about BS. Wonder why they have gone off Infectolab? I was maybe going to go there so this could change which test I go for as don’t want to pay twice for diff tests. Yeah…postage and biolab blood collection costs to consider for the coinfections. Have no history of tick bite but been outside a lot and have a spider bite. Complicated grandual onset but after 20 years of ME and a v weak immune system as thinking it’s something like Lyme.
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Dawn Winter im in uk and had iginex test and came back possitive. never been to america x
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Jasmin Woods Igenex test came back equivocal however Infectolab testing was positive for Lyme with two coinfections and coxsackie antibodies thru the roof. Best check with BS as to whether they will treat a positive Igenex result with antibiotics as they refused to treat Natty Connelly on her pos results. Have you filled out Infectolabs co infection questionnaire Jo they will advise what co infection tests are needed on your symptoms. Although it was expensive I’m glad I had the coinfections tests arranged at the same time. Did I read somewhere that Infectolab keep your bloods for 10 days in case further tests are required? Maybe you could email them.
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Joanne Lee Thanks Jasmin Woods! Wow so that’s been it all this time! Thank god you’ve found out. How are you going to treat everything? Sounds like BS are treating using infectolab results then rather than iGenex then…or maybe neither! I hear Dr M is getting hassled by the GMC. Yep…have symptoms of co infections and got suggestions about which to test for. Oh maybe I should just do the lot. Was about £1k though in total.
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Jasmin Woods Hi Joanne Lee I think your best bet is to ring Patient Liason at BS to get some up to date info on whether they will treat positive Infectolab results with antibiotics as I was told they wouldn’t about a month ago. I think your right Dr M is being hassled by the GMC so her hands are tied. I arrange testing through Infectolab. No sure yet how I will get treatment yet …….will pm you a bit later today.
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Merete Bailey If you know you have a European strain of Lyme disease is it better to seek treatment from a European LLMD or are the american LLMD just as good?